Children and adolescents with chronic kidney disease and after kidney transplantation have the same basic needs as healthy youngsters. They must have possibilities to play, to learn, to have social activities and contacts, and to feel comfortable and safe.
From time to time these requirements are forgotten or hidden under urgent medical needs that tend to seem more important. In the EWOPA network we want to bring the children's / families' points of view out to the open. We want to remind that their experiences and opinions are as important as the medical facts.
Any professionals who are interested in the care and treatment of children and adolescents with chronic kidney disease are welcome to join the network. Thus, we are a multidisciplinary group with psychologists, doctors, play therapists, dieticians, nurses, social workers, teachers, priests and others. This gives a broad and a very fruitful view to all discussions.
Aims of EWOPA
In annual conferences and virtual meetings with topics from different areas of treatment and care for children with CKD the participants can share with each other their experiences from different aspects and, thus, we can provide the best available care and treatment to our patients. Our definition of the best treatment includes not only medical treatment but especially psychosocial well-being.
How is the group working?
As EWOPA is not an association we have no members. There is no annual fee. However, there is a coordination group currently consisting of two pediatric nephrologists ( Finland, France), three psychologists (Germany, Belgium) and a social worker (The Netherlands). Every year during the conference there is a business meeting where we decide who will be the hosts of the next two conferences.
Many new contacts are made at the annual conferences, so that there is also the possibility of communication and exchange between the conferences.
Lately we have been trying out additional ways of professional exchange, e.g., with Zoom meetings.
You are cordially invited to participate in exchange and contribute to the discussion! Please feel free to make contact to Dirk Bethe or anyone else from the coordination group. If you want to be set on our mailing list please send an email to email@example.com.
Join the group! Together we can make a difference!
Center for Child and Adolescent Medicine
Division for Pediatric Nephrology
Im Neuenheimer Feld 430
University Hospital Leuven
Department of Pediatric Nephrology and Organ Transplantation
Tel: +32 (0) 16/34 38 22
Medical Social Worker
Radboud University Medical Centre
Geert Grooteplein Zuid 10
6525 GA Nijmegen
T: (024) 361 32 64
Hopital Jeanne de Flandre
University Hospital of Lille
59037 LILLE Cedex
tel : 0033 320444695
fax : 0033 320446014
email : firstname.lastname@example.org
Department of Pediatric Nephrology and Transplantations
New Children’s Hospital
Helsinki University Hospital
P.O. Box 347, 00290 Helsinki, Finland
Tel: +358 50 4274976, Fax: +358 50 47173700
Clinical Psychologist / Systemic therapist
Department of Pediatric Nephrology [[&]] Rheumatology
Ghent University Hospital
Corneel Heymanslaan 10