What EWOPA is about

Children and adolescents with chronic kidney disease and after kidney transplantation have the same basic needs as healthy youngsters. They must have possibilities to play, to learn, to have social activities and contacts, and to feel comfortable and safe.
From time to time these requirements are forgotten or hidden under urgent medical needs that tend to seem more important. In the EWOPA network we want to bring the children's / families' points of view out to the open. We want to remind that their experiences and opinions are as important as the medical facts.

Any professionals who are interested in the care and treatment of children and adolescents with chronic kidney disease are welcome to join the network. Thus, we are a multidisciplinary group with psychologists, doctors, play therapists, dieticians, nurses, social workers, teachers, priests and others. This gives a broad and a very fruitful view to all discussions.

Aims of EWOPA
In annual conferences and virtual meetings with topics from different areas of treatment and care for children with CKD the participants can share with each other their experiences from different aspects and, thus, we can provide the best available care and treatment to our patients. Our definition of the best treatment includes not only medical treatment but especially psychosocial well-being.

How is the group working?
As EWOPA is not an association we have no members. There is no annual fee. However, there is a  coordination group currently consisting of two pediatric nephrologists ( Finland, France), three psychologists (Germany, Belgium) and a social worker (The Netherlands). Every year during the conference there is a business meeting where we decide who will be the hosts of the next two conferences. 
Many new contacts are made at the annual conferences, so that there is also the possibility of communication and exchange between the conferences. 
Lately we have been trying out additional ways of  professional exchange, e.g., with Zoom meetings.

You are cordially invited to participate in exchange and contribute to the discussion! Please feel free  to make contact to Dirk Bethe or anyone else from the coordination group. If you want to be set on our mailing list please send an email to info@ewopa-renalchild.com.

Join the group! Together we can make a difference!


Contact: info@ewopa-renalchild.com

EWOPA Coordination Group

Dirk Bethe

Pediatric Psychologist
University Hospital
Center for Child and Adolescent Medicine
Division for Pediatric Nephrology

Im Neuenheimer Feld 430
D-69120 Heidelberg


Tel.: +49-(0)-6221-5638370
Fax: +49-(0)-6221-564203 


Lore Willem

Pediatric Psychologist

University Hospital Leuven

Department of Pediatric Nephrology and Organ Transplantation

Herestraat 49

3000 Leuven


Tel: +32 (0) 16/34 38 22

Email: lore.willem@uzleuven.be

Nancy Kamphuis

Medical Social Worker
Radboud University Medical Centre

Geert Grooteplein Zuid 10

6525 GA Nijmegen



T: (024) 361 32 64

Robert Novo

Pediatric Nephrologist

Hopital Jeanne de Flandre

University Hospital of Lille

59037 LILLE Cedex


tel : 0033 320444695

fax : 0033 320446014

email : robert.novo@chru-lille.fr

Elisa Ylinen

Pediatric Nephrologist

Department of Pediatric Nephrology and Transplantations

New Children’s Hospital
Helsinki University Hospital

P.O. Box 347, 00290 Helsinki, Finland

Tel: +358 50 4274976, Fax: +358 50 47173700    
email: elisa.ylinen@hus.fi

Elke De Bruyne

Clinical Psychologist / Systemic therapist

Department of Pediatric Nephrology [[&]] Rheumatology

Ghent University Hospital

Corneel Heymanslaan 10

9000 Ghent




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